19th Annual AMCSI Conference

19th Annual AMCSI Conference


July 3, 2024 - July 6, 2024    
3:00 pm - 2:00 pm


Hyatt Regency Atlanta
265 Peachtree St. NE Atlanta, Atlanta, Georgia, 30303, GA

Event Type

The 19th Annual AMCSI Conference, scheduled for July 3rd-6th, 2024 in Atlanta, GA, stands as a beacon of unity and support for those affected by arthrogryposis multiplex congenita (AMC). This neuromuscular disorder, affecting approximately one in 3000 newborns, often leaves individuals feeling isolated due to its rarity and unique challenges.

Founded through the visionary efforts of a dedicated mother and supported by a robust community, the AMC support group has leveraged the power of the internet to bridge geographical gaps and offer vital support. Beyond raising awareness about AMC, the group’s mission extends to fostering understanding and providing a network of empathy and solidarity. For those who have felt marginalized or alone in their struggles with AMC, the conference serves as a crucial gathering point—a place where individuals, families, and caregivers can connect with others who share similar experiences.

While online connections provide initial support, the conference offers a deeper level of engagement and learning. It provides a platform for sharing firsthand experiences and practical solutions that may be difficult to articulate virtually. Techniques for adaptive living, such as learning to sit up or stand without the use of limbs, are exchanged openly, offering profound insights and encouragement to attendees.

Moreover, the conference is a testament to collective strength and resilience. By bringing together a diverse range of professionals—doctors, physical therapists, occupational therapists—and inviting participants from around the globe, the event fosters a rich exchange of knowledge and expertise. Workshops, seminars, and interactive sessions empower attendees to learn new strategies, share laughter and tears, and forge lasting bonds within the global AMC community.

Each annual gathering reaffirms the importance of solidarity and support in navigating the challenges posed by AMC. It celebrates the victories, both big and small, achieved through determination and shared knowledge. As participants unite to learn, grow, and advocate for greater awareness and resources, the AMCSI Conference continues to strengthen the foundation of support for those affected by arthrogryposis multiplex congenita.

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